Episode Transcript

seeing her brothers run. And just being there for them just being her they’re two liter, and now they are, they’re hurts you leader now because they are voting for her to make sure that we got accomplish the goal, which is what I look to the new city marathon with her this year.

[00:18:55] That’s

[00:18:55] Edgar: [00:18:55] a doer, you know, so that’s why, you know, we all [00:19:00] work very hard to make sure that. Uh, our dreams is not, uh, our dreams to give back for what she’d been through. And it’s hard for a child with special needs, you know, that you have to take care of her. 24, seven, seven days a week, 365 days. So she don’t complaint, you know, and unfortunately she can’t walk or talk and do other things.

[00:19:25] So us, as, you know, parents that we got all our movement, things like that, you know, you have to understand, we can’t take those little things for granted. That can mean it can mean it can mean so much for individual person that, you know, that needs it. So. I mean, my goal is just to give up back. One thing is just give her that, um, marathon metal, because if she could go through this for 17 years and who am I as a person, as a human being to complainant.

[00:20:00] [00:20:00] For 26.2 miles. I understand it might sound like it’s easy. It’s not, you have to put a lot to work in it. You know, you gotta be consistent and you gotta dedicate yourself. So, but in the way, the point of 26.2 miles walk one Crow, you know, whatever it takes me, you know, the point is to start and to finish it.

[00:20:21] And just to give her that memo say, babe, thank you. You know, it means a lot. And I just want to do it for him because as a parent, you know, and as a human being, you know, we have loved ones, you know, for a fact that, um, you would do anything, you know, and at the most just to tell them, thank you, you know, and just to let them know that yeah.

[00:20:46] You know, we are thankful and all, and that’s doing it then and would like to do for my daughter. Just, just give up that, that metal and be tight. 

[00:20:58] Kim: [00:20:58] I’m looking at you so I [00:21:00] can feel the emotion, but I know that people that are listening, they can feel it as well. You know, 

[00:21:05] Edgar: [00:21:05] because it’s just a passion. I’m sorry.

[00:21:07] It’s just a passion as a parent. Don’t 

[00:21:09] Kim: [00:21:09] apologize. Cause I know it’s hard to raise a child with special needs. I can imagine it’s been difficult for you guys. No, 

[00:21:17] Edgar: [00:21:17] they didn’t want to bring a witness pill to, you know, a lot of runners do have, you know, special needs kids and everything. You know, another thing is that.

[00:21:25] I’m very proud of my daughter. I don’t see her as a special need, knowing that she is a CRO as a normal child, but at the same time, bring awareness to those that don’t be ashamed, be proud for what you have, you know, I mean, there’s a reason why all they are here not to preach, you know, and if you do have a special needs child and you have one it’s because the Lord knows that you could take care of it, you know?

[00:21:51] So. I just have a passion and I just wanted to just let people know that you’re not alone and together, you know, [00:22:00] that just, you know, bring awareness that I would child shouldn’t be treated differently or favorite that they should be treated equally and just, you know, bring joy, you know, and bring happiness to, to be with a special needs child, because you don’t see that much, you know, races and things like that, you know?

[00:22:21] And. You know, I, I w I would like to be hopefully that person to bring that awareness that, you know, give them an opportunity. Well, thank you. 

[00:22:34] Kim: [00:22:34] Of course. So how, how close are you to your goal? Because you’re, you’re raising money to purchase a wheelchair to 

[00:22:42] Edgar: [00:22:42] run with. We are halfway there. Thank God. We are closed.

[00:22:48] We are six, 6,300. And I would go this to reach 10,000. So, um, this happened what, three months ago, so far the co-fund 

[00:23:00] [00:22:59] Ruth: [00:22:59] since December. 

[00:23:02] Edgar: [00:23:02] So we are very close and I’m still working hard, you know, hopefully, you know, If somebody see this video, you know, 

[00:23:11] Kim: [00:23:11] my, you know, I DM doing Instagram and I said, I need to get me a hoodie.

[00:23:15] So here’s my destiny, huh? 

[00:23:18] Edgar: [00:23:18] Yes. 

[00:23:19] Kim: [00:23:19] My favorite color is red. So I had to get the black with the red. So I have to wear that. And you sent me some East Harlem United gear. Destiny? Yes. 

[00:23:32] Edgar: [00:23:32] Yes. That’s the package. Yes. 

[00:23:36] Kim: [00:23:36] Yeah, that’s cute. So how much are you selling these T’s and hoodies for 

[00:23:41] Edgar: [00:23:41] the t-shirts I’m selling it for $20, you know, um, hoodies up 30, you know, I’m selling hacks too.

[00:23:48] That’s teen destitute hats too, uh, for 25 and I’m just, um, coming out. I had them bring it out. We got coffee, mugs, coffee mugs [00:24:00] for $15. So. 

[00:24:02] Kim: [00:24:02] I can see those. You could’ve sent me one of those too. I’m going to have to order one. 

[00:24:07] Edgar: [00:24:07] I got you. I got you 

[00:24:09] Kim: [00:24:09] water. You know, I want to contribute what I can to get you to your goals.

[00:24:13] So yes, I will definitely send you over the phone so I can get me one of those mugs. I drink coffee every day, you know, should it, but I do.

[00:24:25] So are you, did you register for the New York city marathon already? 

[00:24:29] Edgar: [00:24:29] Yes, we’re happy to, as I was, I did a nine plus one that did the nine one one 2019, and I was supposed to do a marathon for 2020 due to the coronavirus, the pandemic, everything was canceled. So everything went virtual and, um, I still did it, you know, I still did the painful, you know, We still did the, the marathon, you know, the virtual marathon.

[00:24:57] And I’m not sure if you saw the video, how [00:25:00] I dedicated to my lovely daughter, you know, so we did it virtually and I put it for 20, 21 this year. So hopefully with the new lottery paid or the new guidelines, hopefully I can be picked. So I’m just still waiting on an email. Like everybody else to find out if they’ve run it this year, but as well that I’m burning for hopefully running this year as time, me and destiny four door.

[00:25:32] So I’m just crossing that either one of them, you know, if I could run from, by myself or have the opportunity to run with destiny, but our goal is to run with destiny. So. 

[00:25:46] Kim: [00:25:46] Now, how does that work with you signing up with Dessa? Is it like the same registration process or is it 

[00:25:53] Ruth: [00:25:53] question process? And from what we were told, only five jewel teams will be able to be picked, [00:26:00] but

[00:26:03] they’re going to shorten it and it’s different guidelines. So he will have to register like he did already as a dual team with destiny. So it was a whole different kind of didn’t get it registered for a regular amount of time. Just one person. Yeah. 

[00:26:17] Kim: [00:26:17] Have you looked into any, um, organizations, you know, like Achilles international.

[00:26:24] Edgar: [00:26:24] No, no, we have not 

[00:26:26] Kim: [00:26:26] heard enough. Yeah. Send you. It’s called Achilles international. It’s you know, an organization where, um, you know, people with disabilities, they can do the races. You see a lot of them in New York road runner races, they actually have a race. It used to be in July. Well, it is in July every year, but you know, last year it didn’t happen.

[00:26:44] So if they bring it back this year, that will probably be a good race for you to do with destiny as well. Oh, you told about, they’re curious. We 

[00:26:53] Edgar: [00:26:53] had it. We were supposed to register destiny was supposed to be the [00:27:00] running, um, participate with me that first, um, that first event. With Michael and with this Corona thing, it just went, it just didn’t happen.

[00:27:13] And it was just the beginning of bringing in destiny to do the racist. So we didn’t even have an opportunity to race, you know, but it will be a blessing. We can do it this year. 

[00:27:26] Kim: [00:27:26] Well, hopefully, you know, racing is slowly but surely coming back, you know, pace runs just had a race you just 

[00:27:34] Edgar: [00:27:34] missed out on based on them 

[00:27:36] Kim: [00:27:36] doing another one in a couple in on the 17th.

[00:27:39] And I, I actually registered for that one. So, 

[00:27:41] Edgar: [00:27:41] and then on the 17th, we have our own walk, crawl, run five miles off Randall’s Island petite. 

[00:27:49] Kim: [00:27:49] So tell me about that. 

[00:27:51] Edgar: [00:27:51] Yes, it’s uh, we raising money, you know, um, The purpose of this event is a five mile, you know, read those eyes five miles [00:28:00] and we raising money for teen destiny for special need custom made running wheelchairs.

[00:28:08] So this event was hosted by two guys, two close friends of mine. Don’t punch in check and George Gonzalez, the, although the host of the event, thanks to them for organizing it. So this is just a, a family event. You know, registration fee is $25. You know, you get five items. Our t-shirt a bandana, a bib, a poncho and face mask, you know, put $25.

[00:28:37] You get the whole package. Yeah. Well, yes. You know, give me just got aye. Aye. Aye. How can I say, I love giving back, you know, cause as much as people had gifts, so much support. When I, when I give back to the supporters because who wouldn’t like goodies, you know, as good as, you know, we go t-shirts and you know, we like the [00:29:00] little goodies 

[00:29:01] Kim: [00:29:01] wag, 

[00:29:04] Edgar: [00:29:04] my experience.

[00:29:05] I got to come out with my eyes and make sure that I got my little swag, but. Yes, everything that we, we organize in the package, um, every sentence, every dollar is going straight. 100% for Destiny’s specialized, customized wheelchair. So how you, how can you say we grinding, you know, we grind as much, you know, try to sell t-shirts beautiful hoodies, um, coffee mugs, anything ads, anything that, you know, we could do to raise that money, you know, As a parent, I ain’t giving up, you know, so I do everything I can do for, to help with the family dreams and how I would dream to make sure we get through it.

[00:29:50] Kim: [00:29:50] So how does everyone order March from you to support. 

[00:29:57] Edgar: [00:29:57] So far, I’m working on a website. It should be coming up [00:30:00] soon, you know, just joined. We are just us two and a couple of people are just helping out, you know, hopefully be off. But right now we get ordered through Instagram. You could go to my Instagram page on, we underscore one underscore United and leave me a message.

[00:30:19] Or you could go on Facebook. My Facebook is. My name is Edgar E D G a R. Last name is  B as in boy, U E Z O Z as in zebra, O and you can just message me and I’ll be glad to help you. You just, you know, what I do is I post up pictures to see what I have available at the moment shirts, colors, or whatever you need.

[00:30:44] Just snap the pictures, send me a message on my inbox or a messenger. And I’ll be glad to help you at one thing, I can let you know that everything that I make, everything that you see, t-shirts everything that you know is [00:31:00] 100% made with love. 

[00:31:03] Kim: [00:31:03] I was just thinking that in my head. Yeah, people don’t really, you press these shirts yourself, 

[00:31:11] Edgar: [00:31:11] every shirt, every shirt, hoodie.

[00:31:15] It’s done hand by hand every shirt. There’s no dope. It’s just custom made. Everything is custom made you order. I have it done same day or the next day you will have it. 

[00:31:28] Kim: [00:31:28] Okay. And I can attest people. I am a customer, I’m a supporter. I DM Edgar. And I said, how can I get a hoodie? And he said, what do you want?

[00:31:38] And he made it and he had it in the mail the next day. And I had it in two days. So. I love, 

[00:31:46] Edgar: [00:31:46] I love my customer and my supporters, you know, happy as I get. I have a, I get a thrill seeing, you know, the support I get. Uh, I get so much of a pleasure. Seeing [00:32:00] somebody with your logo support you is it’s, it brings so much joy because from a nice, you know, from a, uh, a dream or just a vision, and to see somebody wearing.

[00:32:12] Your vision or your local of what you’re doing for, for a good cause it’s, it brings so much Joyce that sometime, uh, every day I go through it, it’s so surreal. You know, it just it’s re you know, as we human, you know, I never thought it would just be from a dream or an idea to where I’m at today and within a year span.

[00:32:34] So it’s just been such a blessing and it’s lots of work, you know, definitely gotta put in work, but. In the end, it’s worth every bit, you know, just knowing that you’re doing it for one, for one course. And it’s just making sure that, uh, we raised the money and we make our dream. When I say our dream is when you purchase something, you are a part of team destiny.

[00:32:58] You know, it’s not only us. [00:33:00] We might be in the front line, but without your support without you guys, there’s no team destiny. So I think you guys for being so supportive and thank you for purchasing. And thank you for the opportunity. So this is a team. 

[00:33:16] Kim: [00:33:16] I love it. I’m happy to be your first podcast, right?

[00:33:23] Okay. So hopefully this is the first of many people will see this. They’ll hear it. And you know of it. That’s how this run community works. You know, I know that you guys have your. Pretty new runners, but the run community, especially the New York city running community is very supportive. So the more people that know your story, the more people that will support you and help you to get to your goal.

[00:33:48] So anything that I can do to help, you know, I, I am there to contribute money, to bring awareness, anything that I can do. I’m there for you guys because. Your [00:34:00] story warmed my heart. And that’s why I had to have you on the podcast because you’re doing something for your family, for your daughter, and you know, it’s commendable, not everyone can, you know, deal with that situation and you guys are doing it.

[00:34:15] You know, I take my hat off to you. 

[00:34:19] Edgar: [00:34:19] Thank you for this platform. Thank you for taking your time to give us this opportunity. And I would like to thank the Vani community and those who’ve been supportive. Um, just know that we have a passion like you guys, you know, we all are beginners and, you know, different levels, beginners, medium with pros, you know, we all equal, you know, like you said, the running community.

[00:34:42] Are supportive. So I just would like to know, let Charlie guys know that. I just want to say, thank you, please. You know, if you have the opportunity to help, you know, reach out, we are very thankful for any help. You know, we all started from the bottom and should it be ashamed to ask, you know, so [00:35:00] guys thank you for your platform.

[00:35:02] Thank you to the running community. Uh, we appreciate it. You know, any help. That can help us with team destiny or just the future. I mean, I just want to tell you, thank you in advance. 

[00:35:12] So 

[00:35:12] Kim: [00:35:12] thank you for us. Thank you. I want to thank the two of you for being on The Run Wave Podcast. It was a pleasure having you on, I will leave all of your information in the description so people can order their T’s and hoodies.

[00:35:27] They can, even if you send me your PayPal link, I’ll put that in. If people just want to throw you some money, I’m sure they’ll do that as well.

[00:35:36] help, you know, we’re here for you. So thank you again for being on. 

[00:35:42] Edgar: [00:35:42] Please, let me know if you could, um, that Achilles, um, information and everything and send me a message so I can send you a nice, beautiful teen destiny gift to you. So I appreciate your time and. Thank you for this opportunity. I mean, this is the [00:36:00] first fill and hopefully many more.

[00:36:02] And thank you once again. Thank you, Kevin 

[00:36:06] Ruth: [00:36:06] people know our exploring the passion that we have for our daughter and especially for as, so thank you for giving us this platform. So the spraying and to tell our story about what we’re really doing, 

[00:36:17] Edgar: [00:36:17] when you do see each one United runner and teen destiny, just know that every purchase or, or just by seeing us, please support us, give us that thumbs up and just know that we are here just to give special needs, um, or any platform, you know, disabled, you know, any platform there’s no, that there’s somebody out there.

[00:36:38] Are there to bring, you know, like just to let them know that we here, you know, you’re not alone, you know, we represented your guys, so just know. Are we going to do it together? You know, thank you so 

[00:36:49] Kim: [00:36:49] much. Of course. All right. I hope you enjoyed hearing the story of East Harlem, United runners and team destiny.

[00:36:58] I will leave all of [00:37:00] their information down below. It’ll be on the website of this episode, therunwave.com/episode 40, where you can. Purchase merchandise that were go to the fun, to raise money, to buy the wheelchair for a destiny where you can just simply donate funds to this crew and to team destiny and just follow them on Instagram, follow their progress, you know, get to know Edgar and his wife, Ruth and.

[00:37:28] You know, just fall in love with them. Like I did, because this is a crew and a family that we need to get behind as a running community. So I hope you enjoy this episode. I hope you support team destiny, and I will catch you on the next one later. Thank you so much for tuning into the show. Be sure to subscribe to therunwave on your favorite podcast app and leave us a review of the show on Apple podcasts.

[00:37:57] It would have really helped me out. If you are a [00:38:00] runner that has a story to tell, and you would like to be on the show, you can email. Hello. At therunwaves.com or send us a DM on Instagram to the run wave. See you next time. .